Duchenne Parent Project France is the non-profit association local branch of a European and International network of organizations all founded and managed by parents of Duchenne children (USA, UK, Australia, Netherlands, Germany, Italy, Monaco).

Duchenne muscular dystrophy is a rare genetic disease affecting boys: about 3000 cases have been identified in France. It is a lethal progressive disease caracterized by progressive muscle waisting leading to the loss of walking ability (usually at about 12 years), thereafter breathing difficulties and cardiac complications reduce life expectancy. The patients are more and more dependant on their environment which must provide adequat and constant support.

Even if research has made significant progress during the last ten years, thanks to the genetics revolution and the action of associations, a lot remains to be done to find a cure which will save our children. It is a race against time, therefore Duchenne Parent Project France has set the following goals:
1- Promote, stimulate and enable scientific and medical research in view of implementing as fast as possible the therapeutics to slow down and cure Duchenne Muscular Distrophy.
2- Inform concerned families of the progress of research and medical management of the disease.

With these goals in mind, Duchenne Parent Project France initiate actions to accelerate and stimulate research and involve more and more scientists.
Every year, thanks to different partnerships, we organize international scientific and medical meetings in order to push the most promising research projects.
But we can’t do it alone, you can help us and donate now.